This is one of my favorite lyme inspiration stories now. I'm humbled by her amazing attitude (though giving myself the due acknowledgement, as per my last blog post, of some of my emotional responses to things being lyme-symptom-based to a far greater extent than attitude-based and reminding myself of the dangers of comparisons). She is just simply amazing.
37 YEAR OLD MOM BATTLES NECK DOWN PARALYSIS WITH REHABILITATION
"That feeling of being hugged and that feeling of being able to give a hug is absolutely not of this earth.....My kids had tears, but they also had a look of such pride. And between the hug and the pride, I went, what more am I gonna be able to do?"
Other links I could find:
Kelly's blog: 50 Shades of Lyme
Kelly's Heroes: A group that formed to support Kelley (accepts donations to help with her care)
Nashua Telegraph Article
Rehab video on youtube with text intro by Kelly
ILADS LymeWall: Power of Us Campaign
Important side note (especially if you *think* you might have lyme):
In addition to the inspiration this clip provides, it's a good reminder of the importance of the following words (which changed my life by leading to my diagnosis, and as with Kelly I first heard from a friend of a friend)
LYME. LITERATE. DOCTOR.
All the doctors out there that treat lyme are heroes. They save lives and they give us back our lives. These doctors risk a lot to treat us effectively, because they have to work counter to state and federal treatment guidelines to be effective, at great professional/legal/financial risk. But in doing so they give us back our lives like the physical therapists did for Kelly in this video. No one can give us back the years we lose to misdiagnosis and to infection, and none of us will ever be the same, but for so many moms, you give us back whatever is left of our kids' childhood and all that is left of our lives as functioning people, to whatever extent that is possible for each of us.